When I first learned that I would be taking Gleevec I had no idea of just how rare GIST was and why I would be taking Gleevec.  I did a lot of searching and got a lot of information from different people in support groups.  However, I found that the best information came directly from Novartis (makers of Gleevec) through the different pages on their website.  So as not to be confused when you read different things about Gleevec you should know that it is known as GleevecĀ® (imatinib mesylate) in the US but Glivec outside of the US.  I read about the many side effects that Gleevec might have and was very concerned.  I did get the rash after a few weeks and it seems that everyone gets it to some degree or another.  However, I found that I did not experience most of the side effects and in fact wound up feeling quite good.  I take 400mg. daily and have regular scans.  So far I amd doing well, remaining NED (as they say - standing for no evidence of disease).

Here are some of the links that I found useful:

Gastrointestinal Stromal Tumors (GIST)

From Protein to Pill: The Story of Glivec

 When Taking Gleevec - Things to Remember

Novartis Patient Support Program

GLEEVEC Reports: Patient Support Program

Enrollment Survey

If you are taking GLEEVECĀ® (imatinib mesylate) tablets for your Philadelphia chromosome positive (Ph+) chronic myeloid leukemia (CML), you qualify to enroll in a free support program from Novartis Oncology called GLEEVEC Reports. GLEEVEC Reports has been designed specifically to help people with Ph+ CML. Once you enroll in the program you will receive the latest information about Ph+ CML as well as personalized materials that will tell you:

  • How Gleevec works
  • What to expect from treatment
  • How to manage your condition
  • How to find support
  • How to talk to your doctor

Click Here to Enroll

Home | maillist.asp | contact.asp | Photoalbumdb.asp | Calendar.asp
Gleevec | Novartis Patient Support Program | Gleevec - 100mg Users | Why Join My Mail List | Tumor Growth Learning Tool | Cancer News | FOX 5 News Report

You are visitor number 14255 to this page.
©2006 GIST, an Orphan Cancer and a Personal Story
All Rights Reserved.

Hosted by

Thorough Solutions, Inc.
Tell a Friend about this site: